BY CLAUDIO CONSUEGRA
DIFFERENT REASON FOR MY VISIT might have made this drive through
the Virginia countryside much more pleasant. But this was not a leisure trip.
As the chaplain for one of the hospices in the Roanoke Valley, I was to visit
every new patient to assess their spiritual needs and develop a ministry plan
for them. This afternoon I was scheduled to meet Vicky,* our new patient, and
Darren, her husband of more than 40 years.
Vicky's Last Days
As was my practice, I offered a quick prayer that God would use me to help Darren
and Vicky during such a difficult, painful time. I then made my way to their
door, taking in a few breaths of the crisp, fresh mountain air.
Darren opened the door and kindly invited me in. Vicky sat in
her favorite recliner, looking out the window to their backyard. Her warm smile
took away all the normal apprehension I usually felt at meeting a new patient.
We talked for an hour about their lives, their family, their dreams. We talked
about their understanding of her condition. Asking these questions helped me
not only to ascertain their knowledge but also to determine at which stage in
the dying process they might be. Having felt I had
gathered the information I needed, I asked my routine closing question: "Are
there any questions I might be able to answer for you?" Darren answered
quickly that he didn't have any questions. Vicky waited a few seconds; then
she asked me a question I had never been asked before: "How will I know
when I'm ready to die?"
In the few seconds it took me to recover from the surprise at
her question, it was as if God gave me the answer. I responded, "The day
you met Darren, if he had asked you to marry him, what would you have said?"
"I would have told him he was crazy."
"So then, I'm guessing you two met, went out a few times,
talked a lot, dated for a while, and fell in love. Then one day Darren asked
you to marry him, you accepted, and here we are, right?"
She smiled, looked at Darren, and answered softly, "Yes, something like
that."
"Well," I said, "it's like that when it comes
time to die. During the next few days, weeks, maybe months, you'll have an opportunity
to get to know Jesus even better than you already do." I had learned that
they belonged to a Christian denomination. "You'll talk to Him, you'll
read about Him, He'll talk to you while you're awake and maybe even while you're
sleeping. And then one day you'll hear Him say, 'Vicky, it's time to leave the
pain of this world behind.' Then you'll know it's time to stop the fight and
rest in Jesus."
Vicky sighed, looked up at me, smiled, and said, "I like
that. I feel better."
During the next few months I visited Darren and Vicky regularly.
Thanksgiving came and went, and Vicky was doing well. The Christmas season with
all its joys and memories arrived and left, with Vicky surrounded by her children
and their families. The next event was Easter, and it became more obvious with
the passing of days that she might not make it that far.
The week before Easter I was at the office when Vicky's primary
nurse came in quickly to pick up some medicine. She stopped by my desk and said,
"I think you should go to visit Vicky; I was there this morning, and I
think she's dying. I'm getting some stuff I need, and then I'm heading back
there." I didn't even bother to call, but simply started out. When I arrived,
Darren opened the door with a sigh of relief and said, "Oh, I'm glad you're
here."
Vicky was semicomatose. I sat next to her bed, held her hand,
and spoke softly. It is the commonly accepted belief in health care that hearing
is the last sense to leave a patient, so one must be careful about what is said
in their presence. I told her I was there and that it
had been my joy and honor to have known her and Darren. I also told her that
we would miss her--particularly her family. But I assured her that they would
be OK, and she needn't worry about them. I then read to
her the twenty-third psalm, giving special emphasis to the words "Even
though I walk through the valley of the shadow of death, I will fear no evil,
for you are with me" (Ps. 23:4, NIV). I then prayed and thanked
Jesus for the life He had given her, for her family, for the many years she
was married to her husband, and asked Him to take good care of them and to take
care of her. As I closed my prayer with the customary "In Jesus name, Amen,"
she took one last breath, relaxed, and died.
Ministering to the Dying
What an awesome experience it is to help usher someone into their sleep of death,
to help them during one of the most important transitions--indeed the last one--in
their life! It's sad to think of the millions who die daily with no one's help
or company. Here are some things you can do to help someone who is dying.
1. The ministry of presence. Most people feel
uncomfortable, maybe even afraid, to talk about death and dying. Therefore,
when they hear that a friend, loved one, coworker, or schoolmate has been diagnosed
with a terminal illness, they stay away. In reality, what you say is not what
matters to the terminally ill person or their family, but rather the fact that
you cared enough to come be with them. However, respect their privacy and always
call beforehand. If they are in a hospital, you must not only respect visiting
hours but also be conscious of the fact that those visiting hours may be the
only time the family gets to spend with their loved ones. Make your visits brief.
2. Listen. More important than what you say is how much
you listen. While most people's greatest fear is not knowing what to say, if
you go prepared to listen and let the terminally ill lead in the conversation,
you might find that death is not all that's on their mind. They just want someone
to talk to.
3. Empathize, don't proselytize. If the person who is
dying does not share your beliefs, this is not the time to try to convert them
to your belief system; to do so may cause more anxiety than assurance. For instance,
several of my patients talked about going to heaven after their death. Rather
than lecturing on the state of the dead, I would say something like "As
Christians we have a special hope, don't we?" or "That's a comforting
thought, isn't it?"
4. Offer practical help. Many people take the easy way
out at the end of a visit with the standard offer "If there's anything
I can do, just let me know." The reality is that during these difficult
times the challenge for the patient includes thinking about what needs to be
done or asking someone to do it. It would be better to offer to do specific
things for them--mow the lawn, wash clothes, or run errands such as grocery
shopping. Sometimes an offer to stay with the person who is ill to relieve the
caregiver for a few hours can be the welcome help they need.
5. Watch for special events. People who are terminally
ill seem to have control over when, where, and how they die. One of my patients
waited until the day after his daughter's birthday, and the night he died he
was so restless that his wife decided to sleep in the living room. When she
woke up the next morning, he was dead. He had chosen not to die before or on
his daughter's birthday, and he didn't want his wife to see him die. Others
wait for loved ones' or their own birthdays, anniversaries, graduations, baptisms,
weddings, and other special occasions. Be aware of this fact as it may help
you get an idea of when they might die.
6. Fear of dying or of death. One of my patients told
me he was afraid. I asked him if he was afraid of death or of dying. He said,
"I'm not afraid of death; I just don't want to die in pain." Most
people are afraid of the dying process, and not of death itself. In his case
I assured him that we in hospice would do all in our power to keep him comfortable
and without pain or discomfort. That assurance helped him relax and enjoy the
last few days of his life. If the person you're visiting expresses such fears,
clarify what the source of their fear is, and if they are uncomfortable or unable
to answer, ask someone else who may be better able to answer.
7. Help them to die in peace. In hospice we have learned
that those patients who struggle the most in their dying process seem to be
the ones who have strained relationships with someone. It may help them to ask,
"Is there someone you would like to see or talk to?" Offer to contact
the person they'd like to speak with. If the other person is not willing to
speak with the terminally ill patient, you can facilitate the expression of
their feelings by offering options such as, "If you could talk to them,
what would you tell them?" You may offer to help them write a letter that
they can then choose to mail or burn, thus symbolizing their having taken the
step of reconciliation. Many patients wait to die until after they see someone
they care about, so you could offer to help make the contact.
Another way to help them die in peace is to pray for and with
them. The medical field has come to recognize the benefits of praying for those
who are ill. We need not feel the obligation to pray for healing; it does not
reveal a lack of faith, but recognition of the inevitable. When I pray with
and for members or patients who are terminally ill, I pray for comfort and peace,
courage and strength, hope and renewal of love for themselves and for their
loved ones.
Instruments of Peace
Dying can be a difficult and painful experience, or a special memory for their
loved ones. You can be instrumental in making it as comfortable and comforting
as possible by carefully doing for them what they need as they write the last
chapter in their earthly life.
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*Not their real names
Elisabeth Kübler-Ross describes the five stages that those who are
dying go through as: denial, anger and isolation, bargaining, depression, and
acceptance (On Death and Dying [New York: McMillan Publishing Co., 1969]).
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Claudio Consuegra, M.S., is a pastor, law enforcement chaplain, and police
patch collector.